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In January 2018, The National Data Guardian and Connected Health Cities commissioned a citizens’ jury to better understand what patient data sharing scenarios can be ‘reasonably expected’ in the eyes of the public when they are given the time and support to think through such complex matters. The jury was designed and run by Citizens Juries c.i.c. working in partnership with the Jefferson Center. This piece of work originates from conversations about the extent to which implied consent can be used to support data sharing, particularly in the context of new technology and models of care.
exploring when people would normally expect their confidential patient information to be used and shared and when they would expect it to be kept private – Connected Health Cities
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